The Stroke Support Organization Toolkit is WSO's ‘core’ resource offering guidance on developing and growing an SSO. It is intended to support key aspects of developing an organization: people, purpose, management and impact. We will follow this core resource with a suite of manuals that will delve deeper into topics including campaigning and advocacy and life after stroke issues.
WSO recognises the importance of SSOs and their contribution to raising awareness and improving stroke care. In 2020 WSO completed the first ever global mapping of SSOs to understand where they are located and what activities they are delivering. The responses from 92 SSOs across 58 countries showed that, not only is the global SSO network growing, and mobilizing large numbers of people affected by and engaged with stroke, but many SSOs are operating beyond their own borders. As a result, SSOs have considerable potential to drive improved stroke outcomes globally. However, the global mapping highlighted several challenges faced by SSOs:
- The unsustainability of human and financial resources.
- Inadequate national strategies and policies for stroke prevention, treatment and recovery.
- Lack of data and awareness about stroke incidence, prevalence, symptoms, and emergency response.
- Inadequate recognition of rehabilitation in countries and limited life after stroke services.
This toolkit aims to respond to some of these challenges by acting as a resource for both existing and new SSOs.
SSO Toolkit update 2024