The importance of support systems in navigating journeys towards recovery and adjustment.

18 Mar 2025 Stroke support

National Stroke Aid is a stroke support organization in Zambia that was established in 2019 by Phanuel Mabbola, a physiotherapist. Phanuel recognised the extent to which stroke survivors are neglected or ignored in the city of Lusaka and he decided to establish an organization to address the long-term needs of survivors of stroke in the community.

Here Phanuel tells us about the work of the stroke support organization and a recent event in Lusaka.

In Zambia, stroke is a leading cause of death and disability and is increasingly affecting a younger population, with hypertension the most common risk factor.

In response to the incidence and prevalence of stroke in the country, the objectives of National Stroke Aid are:

To help reduce the incidence of stroke through sensitisation of the community on the causes of stroke and the need for healthy lifestyles
To provide physiotherapy and occupational and home based care
To advocate for policy that includes stroke survivors’ empowerment and involvement in decision making institutions
To organise workshops or seminars and hold social gatherings for stroke survivors

In early March, National Stroke Aid held a gathering in Lusaka aimed at connecting and providing support for stroke survivors and their caregivers. The event served as a platform for members to share their personal experiences, fostering a sense of unity and resilience among the 17 attendees, including stroke survivors, caregivers, and National Stroke Aid.

During the event, several stroke survivors took the opportunity to share their feelings and experiences. They candidly discussed the challenges they encounter in their daily lives, highlighting both the physical and emotional impacts of stroke. Participants emphasized the importance of support systems, including family, friends, and organizations like National Stroke Aid, in navigating their journeys towards recovery and adjustment.

Their stories illuminated not only the struggles but also the triumphs and small victories they experience. This exchange brought to light the resilience of the human spirit and the significant role that awareness and support play in the lives of stroke survivors.

The event was not just a gathering, it was part of National Stroke Aid’s ongoing programs aimed at raising awareness about stroke and creating a supportive community for survivors and their caregivers. National Stroke Aid is also conducting other social activities such as aerobics in various locations in Lusaka on a weekly basis and is committed to organizing more events like this, as it continues to encourage increased participation from stroke survivors and caregivers to amplify their voices.

National Stroke Aid hopes to expand its outreach and engagement through social activities in an effort to address the isolation experienced by stroke survivors and their caregivers which can result in increased stress and disconnection. The stroke support organization is determined to leave no-one behind.

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